Parenting Children with Special Needs
The Spoon Theory for Generation Z; A New Explanation of Living with Chronic Pain
The Spoon Theory for Generation Z Those of us with chronic conditions like Multiple Sclerosis, Fibromyalgia, Lupus, Ehler’s Danlos, Lyme, mental illness and many more, often have the terrible and heart-wrenching task of explaining to our children what it all means. If our children are young, this mission can be even more daunting.…
Read MoreWhen I Found My Voice
When I Found My Voice Finding my voice didn’t happen over night, it was a long time coming. Although the flame of inspiration had been smoldering since I took on the challenging role of being a single Mom with disabilities to children with disabilities, the gas that set my latent courage ablaze came later.…
Read MoreI am a Child With a Disability
My Day I begin my day wearing a backpack that represents my disabilities. I have a few and each one is a rock in my backpack that I can never take off. Waking up, my backpack is already a bit heavy, annoying really, as my vision complicates picking my clothes, taking my meds, handling the…
Read MoreRaising a Son with Special Needs: Living With The Unknown
In November, almost 16 years ago, my 4th child was born at 23 weeks gestation. The third of four premature children I would give birth to. At 1lb and 3 ounces, an apgar score of 2, he had little chance of survival. My smallest baby. My fragile, precious, tiny prince that would not likely live.…
Read MoreFirst Day Again
I entered the stylish and massive building juggling too many things in my hands and mind to see an ocean of back-packs, colored hair, attitudes and droplets of teenage body odor. Kids in tow, we weaved our way through the sticky crowds of aprehensive and exuberant cliques down the main hall. My 17 year old…
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